BETHESDA, Md.–(BUSINESS WIRE)–The Cystic Fibrosis Foundation has announced the recipients of its first
annual Impact Grants. The program provides funding to support people
with cystic fibrosis who are creating unique projects in their
communities that serve people with the disease and their families.
Cystic fibrosis is a rare, genetic disease that causes chronic lung
infections and premature death.
The 2016 grants award $10,000 each to seven diverse programs across the
country — from one that teaches singing as an outlet for creativity and
wellness, to others that provide personal fitness and health training to
individuals with cystic fibrosis. Recipients were chosen by the CF Adult
Advisory Council, an external panel comprised entirely of adults with
the cystic fibrosis, in partnership with the CF Foundation.
“People with CF have the greatest insights about how to live with this
disease,” said Drucy Borowitz, M.D., vice president of community
partnerships at the CF Foundation. “We are honored to support these
organizations that harness the power of the CF community to help people
with this disease and their families live better lives every day.”
The grant award recipients include:
The Cystic Fibrosis Lifestyle Foundation (CFLF), a
nonprofit organization that helps people with CF maintain a healthy
lifestyle. The CFLF provides assistance to children and adults with CF
who demonstrate a financial need and personal desire to improve their
The United States Adult CF Association (USACFA), a nonprofit
corporation run by adults with CF, offers the community an opportunity
to exchange medical and nonmedical information through its quarterly
national newsletter, CF Roundtable.
Project CF Spouse is a nonprofit organization dedicated to
supporting spouses of people with CF. The grant will be used to grow the
150-person group, expand educational resources, and facilitate
connections between other spouses as they navigate their own CF journeys.
The sINgSPIRE program, through Breathe Bravely, will
provide free, private voice lessons with a qualified voice instructor
who will work on strengthening participants’ respiratory systems and
improving self-awareness and confidence.
Program NuYou, part of Attain Health, is an online health
coaching and personal training program for individuals with CF. Each
participant receives time with an integrative health coach and personal
trainer, and the program includes weekly check-ins, video conferences
and a workout plan that is tailored to individual participant’s needs.
Miles for Cystic Fibrosis supports Project BreatheStrong,
which provides grants for children and adults with CF to take part in
activities that will improve their mental and physical heath.
Continuing Education for Caregiver/Individuals with CF supports
individuals affected by CF through educational workshops that
concentrate on various aspects of the disease.
About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world’s leader in the search for a
cure for cystic fibrosis. The Foundation funds more CF research than any
other organization, and nearly every CF drug available today was made
possible because of Foundation support. Based in Bethesda, Md., the
Foundation also supports and accredits a national care center network
that has been recognized by the National Institutes of Health as a model
of care for a chronic disease. The CF Foundation is a donor-supported
nonprofit organization. For more information, please go to www.cff.org.
Cystic Fibrosis Foundation
Laurie Fink, 301-841-2602
Director of Media Relations